Christine left today and headed back to the deluge on the east coast. She was a huge help and Grace loved her company. We had another gorgeous day here in California, but unfortunately we are not here to enjoy the weather. Most of the day is spent in the hospital and our ICU room does not have the wonderful view that our previous set-up had. It is difficult for Grace; we are in a holding pattern and she will not really feel better and heal until she can move around more freely without the lines in her head. The doctors may clamp the lines tomorrow evening to see if her spinal fluid is properly draining internally. If so that will be a big step forward. The neuro team is dropping Grace's anti-seizure meds post surgery to a more tolerable level. We heard that the Lifting Grace event was a big success. Thanks again to our extended Darien football family!
We are thinking of you.
ReplyDeleteHi Grace, Debbie and Seth,
ReplyDeleteAs always you are in our thoughts and prayers. Went to the lift-a-thon yesterday and it was a fantastic event. The boys were so enthusiastic (not to mention strong!). Hopefully we raised tons of money for The RE Children's Project and an eventual cure.
Grace, everyone that Charlie contacted for sponsorship was so impressed with your bravery and strength. You are a super star. Hope you are back in Darien soon.
Love,
The Kunze Family
Hi everyone,
ReplyDeleteSo glad to hear that the Lift-A-Thon went well. We've had some crazy weather here on the east coast!! Glad to hear at least the weather there is great. Hope you are home soon in what promises to be better, warmer weather here as well.
Love,
Ellen and Charlie
Sounds like you are surrounded by good friends and family Grace as you take each step forward. Hope that tomorrow is a good day and that you are in less discomfort and are able to enjoy more of each day going forward. Thinking of you and praying for you everyday...much love being sent your way...alice kennedy
ReplyDeleteGrace, we are hoping that all of those lines get clamped, and you can start moving again. You're a real powerhouse if you can do this twice. I know it stinks, but this is the week that things will improve.
ReplyDeletegood morning Grace! sounds like things are moving in a positive direction - hoping you are starting to feel better and will look forward to you returning home. Hang in there -
ReplyDeleteLove, Betty and the Boys - sounds like a 'rock band'!